Jamie Brown, Living with Amyotrophic Lateral Sclerosis

Runtime: 69 minutes  /  : English

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Video Transcript for Jamie Brown, Living with Amyotrophic Lateral Sclerosis

Transcript + PPT (259 KB) audio file

Video Excerpts

  • A series of losses

  • Advice to Others - Get Help

  • Bedbound time is short

  • Emotional response to loss of mobility

  • Faith helps me cope

  • Humiliating loss of privacy

  • I don't have time to waste

  • I used to be shy

  • I'm not afraid of dying but of getting from here to there

  • Importance of person rather than tasks

  • It's dangerous to cry

  • Last Words

  • Made my funeral arrangements

  • Scary SOB

  • The Beginning

  • The morphine works

  • What is disease?